A Short biography on the speaker, Hon Beatrice Anywar
Hon Beatrice Anywar is among a handful of women who serve in the Ugandan Parliament and represent her district of Kitgum. Beatrice holds the portfolio of Women and Children welfare, and she is the chairperson for the Gender, Labour and Social development. Hon Beatrice has been an advocate for the rights of women and children in Uganda for many years, and during this time she has established a number of health programs to support women and children. Hon Beatrice is dedicated to raising awareness of the debilitating condition known as Nodding Syndrome. This condition affects children between the ages of 5 to 15 in Northern Uganda, South Sudan and Tanzania.
A Short description of the charity work
Acholi Resilience is a not-for-profit charity registered with the Australian Charities Not for profit Commission and endorsed with the Deductible Gift Recipient status supporting Acholi people. We are stopping Nodding Syndrome victims throwing themselves in fire and rivers. We are supporting orphans' education and eradicating generational poverty in Northern Uganda. Visit our website for more information www.acholiresilience.org.
Acholi Resilience is working together with Hon Beatrice to bring about awareness and support to victims affected by this devastating disease. Acholi Resilience has established health and education programs to advance the lives of Acholi communities. Our charity is focused on advocating and supporting vulnerable and marginalised Acholi communities in Northern Uganda.
A Short description of Nodding Syndrome
Nodding Syndrome is a debilitating medical condition that affects cognitive ability, causes cerebral palsy, decreased physical ability with no emotional and or social ability to interact. There is some anecdotal evidence purporting that chemical weapon might have been used during the conflict in an attempt to eradicate Acholi people from Northern Uganda. However, research indicates ingestion and exposure to toxins and toxicants in food provided in the Internal Displaced Person Camps might be responsible for the spread of Nodding Syndrome in Northern Uganda. Presently, a large proportion of children are born healthy but when they turn 5 years old, they develop Nodding Syndrome disease. There is no current research output underpinning the actual cause of Nodding Syndrome to children. This is a great opportunity for Australian medical researchers and pioneers to spearhead research into Nodding Syndrome to help tackle this deadly disease in Africa. The success of research program will have a direct benefit to Australia in that it leverages a unique opportunity presented by knowledge gained to attract more consultative contracts from affected countries to combat the disease, morespecifically, it will also help to:
Promote and advocate for Nodding Syndrome disease to the world;
Facilitate knowledge sharing between researchers in international arena regarding Nodding Syndrome;
and build capacity and capability of medical students in Africa to tackle Nodding Syndrome disease.